Psalm

Put your hope in the Lord. Travel steadily along His path.
Psalm 37:34

Sunday, March 26, 2017

The Blame Game

How often, when something bad happens, do you quickly look for someone or something to blame? Yeah me too! It almost becomes second nature. If we can find someone, or something, else to blame for our misfortune, it makes it much easier to accept. According to Google, which knows everything, it is called "blame culture."

For the last 21 years or so,  cancer has been THE "thorn" in Mandy and my  life. A couple of nights ago, after helping Mandy to bed, I laid down in our bed which is right next to her hospital bed, and asked her if she has ever blamed God for any of this. Now, I had asked myself this same question earlier that day and realized that I had come up with plenty of ideas of where to place blame for our situation over the past 21 years. First I thought about genetics.......nope, ovarian cancer does not run in her family and she tested negative for the BRCA 1 and BRCA 2 genes, so that's not it. Hmmmm, Mandy was born in northern Arizona, which was affected by the wind drift of the nuclear testing that was done in Nevada years ago. They call the people affected, the Downwinders, and the government pays $50,000 to anyone who develops certain types of cancer and lived for two years in certain counties in Arizona, Nevada and Utah from 1951 to 1962. Strike two, Mandy wasn't born until 1973, so that can't be it. In today's climate, it would be perfect to blame the government for all of this and Trump hasn't tweeted anything about ovarian cancer, YET. What about talcum powder???? Just recently a woman's family was awarded millions of dollars for her untimely death due to ovarian cancer from years of use of talcum powder. Mandy used talcum powder. I might actually have to look into this one! What about Big pharma, they are an easy target to blame. There is a large portion of the population that believes big pharma can cure cancer, however, they make so much money in treating cancer that it would be "bad business" to actually cure it! For example, one of Mandy's chemo drugs cost $80,000 per treatment! Maybe we can blame the family doctor who failed to properly diagnose Mandy which delayed her initial treatment by months as she attempted to treat Mandy for a multitude of "other" conditions. What about blaming the cancer itself? But, that would be like blaming the bed for hurting my big toe when I kicked it in the dark the other night, as if the bed did that on purpose.

No, not one of those brings satisfaction to our situation. However, as Mandy and I separately pondered over our situation, we both concluded that we had never blamed God for this. We have both had some serious conversations with God asking "why?" But not once have we blamed Him for all of this. On the contrary, God has been the One who has kept us together and helped us get through all of this. He knew before Mandy and I even met that we would have a love that would be strong enough to endure all of this. Just think about that for a second, God, the hopeless romantic, knew that with His guidance, we could write a love story worthy of a blog!

As we laid there discussing this, I had the strongest feeling that I needed to do something. I needed to FORGIVE cancer. So, for the past 7,574 days that cancer has been an uninvited guest in our house, for all the times I have cursed it, I want to, no I need to say "Cancer......I forgive you!"


I don't want to spend anymore of our precious time or energy by hating cancer or figuring out who or what to blame for this disease that ultimately will end my beautiful wife's time here on earth. I would rather celebrate our life together and all the fun and love that we have been able to share with each other and with our tribe! So, in the spirit of Jesus' teaching, I will forgive 1,082 x 7, because that is how I can move forward.


One of the things Mandy has enjoyed most is cooking and baking. It was one of my favorite things too! If you were lucky enough to have partaken of a meal or dessert prepared by Mandy, then you know what I am talking about. Yesterday Mandy presented me with a handwritten cookbook of all of our favorite recipes and a few new ones for me to try. I told her that she probably should have included some take-out menus from some of our favorite eateries in Flagstaff! She continues to take care of me and wants me to be able to fend for myself, so she patiently sat next to me guiding me through preparing one of our favorite meals that she adapted from Pioneer Woman called "Marlboro Man" sandwiches. Mandy grew up learning how to cook from her French-Cajun grandmother who, whenever we visited in Louisiana, always made sure we left 10 pounds heavier. Mandy was always happiest creating a masterpiece in the kitchen. I am glad to report that my cooking was edible and we enjoyed the sandwiches immensely.


Just recently, Mandy created what will likely be her last bucket list, and this one consists of all the foods she wants to eat before she goes! I love this woman! The list has 13 foods/restaurants on it, of which we have checked off one so far.

I know I can't hold a candle to the hurricane that is Mandy's writings, but this is something that I just had to get off of my chest. Thank you for indulging me and for your continued prayers for Mandy and myself.

Jay

Sunday, March 19, 2017

This World is Not My Home....Passing the Blog Baton

When I read Hebrews 9:27 and see that it is appointed for man to die...I think..I can comprehend that. The truth is, that it feels so far into the future and it is so non-specific, it is easy to acknowledge and ignore.


When my Doctor and Nurse both agree they feel I have a certain number of days remaining, it becomes much more specific, yet no easier to comprehend. I would think that being this close, I would be able to wrap my head around it, but I cannot.




We live our lives "knowing" way in the back of our minds, that, unless Jesus returns first, we will all die. However, until you are given an actual timeline, it rarely feels real. Heck, even when you are given the timeline, it still doesn't feel quite real. 
I have no way of truly grasping this concept. One moment I think I have peace and understanding and in the blink of an eye, that all shatters and I am left staring down at the broken shards, wondering what to do.

What I truly want, as I see this life and realm fading, is for the heavenly realms to open and reveal themselves - giving me a glimpse of what awaits me. I can only imagine what that would be like, but, faith doesn't ask me to believe in what I see, faith asks me to believe in the unseen promises.


Jay and I discussed pain levels a few days ago while talking about pain medications. We realized that I have not had a pain free day in over 20 years. I cannot even fathom what no pain feels like - it is truly all I know.


I thought about the dramatic difference I would feel once I reach heaven - no pain, no sorrow, no fear - all GONE, thanks to JESUS!


I have decided to start thanking and praising Him now for the mercies He will give me when I meet Him.  20 years of pain traded for an eternity of perfection - the least I can do is be thankful and praise Him.



This will most likely be my last blog. My swollen body is beginning to ebb. I find myself sleeping more and more. I have a hard time focusing on even small tasks. Even writing this, I have dozed off a couple of times. 



I want to thank each of you for reading our story and for responding with such love and compassion. Jay and I are forever grateful for each of you.

Jay has agreed to take over the blog for me. He is an incredibly gifted writer and will faithfully keep you all posted as our story and journey continue to unfold.



May God bless and keep each one of you in His strong arms of love always.

Blessings,
Mandy

Saturday, March 11, 2017

Walking Me Home

Yesterday we met with Dr. Monroy - the Hospice Doctor. She's extremely kind and calm. She thoroughly explains things. We made the decision a few weeks ago, to just see the Hospice Doctor instead of having a Palliative Care Doctor and a Hospice Doctor. Too many docs and things were getting a bit muddled. 
                                                            Nurse Stacy

Yesterday, we discussed new symptoms and possible treatments. I'm experiencing pretty severe lymphedema in my legs and feet. We tried lasix a few weeks ago, however, my potassium bottomed out and caused some serious side effects. We may be able to try a more mild diuretic in the future. We will also try a newer type of banding than the compression socks. We are praying something works - this stuff is miserable. I weighed yesterday and in two weeks, I've gained 12 pounds of fluid. If the banding or diuretics do not work, the fluid will become too much for the tissues to bear, and will begin to weep through the pores in my legs.  Yep - it is gross....Cancer is gross!!


                                        Jay & Lisa helping with my compression socks

There are a couple of possible reasons for the lymphedema. It could be due to the tumor burden in my abdomen that has basically "broken" my lymph system. It could also be a possible blood clot in my pelvis. There are no treatment options available for either. If it is a blood clot, the treatment would be blood thinners, however, the large abdominal tumor has begun some bleeding episodes again, and we cannot risk the use of blood thinners.

                                                                My Heart

We have had some wonderful visits the past couple of months. Mark and Carolyne came out for a couple of days then spent some time in Sedona. They were set to come back to stay with us a few days, however, Carolyne caught a nasty cold and the decision was made for them to head back home rather than risk infecting me.

                                                            Steiners' Visit
Jay's family has made several day trips up to see us and Jay's mom spent a few days with us. It was a blessing having her here when my potassium levels bottomed out - having a nurse on hand 24/7 was great. 
My Mom came up and spent a few days here. She gave me foot rubs, and we spent time laughing and crying and telling old stories.

                                                                  Foot Rubs
Ginger was here last week - as always, we spent much time crafting and just enjoyed being together.

                                                     Laughing with Ginger

My Dad, Charla and Somer will be here next week. Somer recently got engaged so we cannot wait to browse through bridal magazines and Pinterest!

All the visits bring so much love and joy to our lives. We enjoy the time we are able to spend together while I am awake and coherent and able to enjoy their company.

My Doctor explained to us there are a few ways my disease may progress:
a) symptoms could slowly increase and my health could steadily and slowly decrease. This means more suffering for me, however, it would be much easier for my family.
b) quick decline: this would be easier for me, yet harder for my family. 
We are hoping for a combination: slow enough to gather my tribe around me and quick at the end. That's not too much to ask.
c) If it is a blood clot, the decline could be instantaneous. My Doctor told Jay that should it happen that way, to remember that although it will be more difficult for him, it is one of the easiest ways for dying to happen.

                                                          Out for a Stroll

With the lymphedema, it is now very difficult to walk and the fatigue is steadily increasing. I nap often during the day and find myself dozing off and not being able to focus on tasks because I'm too sleepy.

                                                            Blog Writing

We have now reached a noticeable point where my tribe is walking me home. Every day as I edge closer to the door of heaven, my tribe walks near to my side. They love me with foot rubs, crafting time, sweet conversations, laughter, tears and grace. 
These people have never wavered in their love, compassion and willingness to do whatever is needed to gently ease our burdens. Our lives would not be the same without them.

Blessings,

Mandy